Floppy: Tales of a Genetic Freak of Nature at the End of the World

(Paperback)

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Description

When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, shes finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wifes mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like

Reviews

"This is not a tidy story, but in its messiness, Graybeal's book reflects the complexity of life with EDS. Those coming to terms with their own chronic illness or that of a loved one will find this unflinching memoir illuminating." Rebecca Hopman, Booklist

"In this compelling memoir, debut author and cartoonist Graybeal writes about her life living with chronic pain and her childhood diagnosis of the rare genetic connective tissue disorder called Ehlers-Danlos syndrome." Bridgette Whitt, Library Journal

Author Bio

Alyssa Graybeal is a queer writer and cartoonist whose work focuses on the emotional landscape of living with chronic illness and disability, in particular the connective tissue disorder Ehlers-Danlos syndrome. Floppy: Tales of a Genetic Freak of Nature at the End of the World is her first memoir and won the 2020 Red Hen Press Nonfiction Book Award. She has a BA from McGill University and an MLIS from Dalhousie University, and she works as an editor and writing coach. You can find her online at www.alyssagraybeal.com. She lives in Astoria, Oregon.