Saving Sarah
By (Author) Janet Murnaghan
St Martin's Press
St Martin's Press
1st October 2018
1st October 2018
United States
General
Non Fiction
Coping with / advice about illness and specific health conditions
Health systems and services
Transplant surgery
362.1963720092
Hardback
256
Width 161mm, Height 241mm, Spine 23mm
454g
Sarah had been dying of cystic fibrosis since the day she was born. The disease quickly ravaged her lungs and little body bit-by-bit. Fragile and frail, she had only weeks to live, when her mom realized the reality of Sarah's situation: transplant laws, restricting access to lungs based on arbitrary age restrictions, meant Sarah's options were limited. The injustice of her daughter's fate spurred Janet to start a public battle against outdated health care regulations and a battle to save Sarah's life. Janet transformed her pain and desperation into a voice for Sarah and other kids using social media as her megaphone with friends and family as Sarah's warriors. How does a family navigate catastrophic illness and life in a hospital, while still maintaining a sense of normalcy Saving Sarah is a story of hope and courage, and a mother's determination to never give up. It's also the story of how a family-Janet and her husband Fran have three other children, one adopted from Ghana-reacts and adjusts when one of its members is in ongoing crisis.
"Readers will be deeply moved by this harrowing story and this family's fortitude, anguish, and love." --Publishers Weekly
JANET MURNAGHAN is a former television news producer and public relations executive. When her daughter Sarah was denied a life-saving double lung transplant, she led a campaign to save her daughter's life with the support of the media, members of Congress, and the general public. She lives in Florida with her husband and four children.