The Day after Yesterday: Resilience in the Face of Dementia

(Hardback)

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Description

A deft combination of narrative and portraiture that breaks the taboo around dementia, replacing the fear and futility with empathy and nuance. A graphic designer, a writer, a public servant, a retired PhD, a 29-year-old with early-onset Alzheimer's. These are just some of the 50 million people living with dementia who share their deeply personal stories with Joe Wallace in The Day after Yesterday, a powerful collection of portraits and personal stories that humanizes the millions of people living with the disease. Each story in this poignant volume offers a unique and powerful lesson-not just about how to live with a terminal illness, but how to do so with resilience and dignity. Dementia is often a taboo subject with limited public awareness or discourse. A diagnosis can become a mechanism for segregating those affected from society, making it easier to see only the label and not the individual, which, in turn, makes it easier to ignore the burgeoning health crisis and the individuals themselves. But as one man told Wallace, "Don't believe the narrative that life is over. I want my voice to help get people to treat us the same as they did before we got the diagnosis. We may change some, but we are the same people!" More than a visual representation, The Day after Yesterday's compassionate portraits capture the dignity and richness of each individual, destigmatizing dementia and enabling a loving, respectful, and much-needed conversation.

Reviews

A taboo surrounds dementia and Alzheimers, a cloud of fear and misunderstanding that distances people from those with the disease, relegates them as gone, lost, other. The Day After Yesterday: Resilience in the Face of Dementia (MIT), a new book of photographs by journalist and photographer Joe Wallace, aims to destigmatize the people living with dementia by telling a more complex and complete story. The book includes dozens of portraits and short written bios and descriptions of Wallaces encounters with the subjects. The range of ages is striking: people in their 30s, having inherited a mutation that brings Alzheimers to them early, all the way to age 100. It doesn't matter how far gone they are into the disease, says Daisy Duarte, whos guaranteed to have it by age 65. They still have ears, and they still have a beating heart. That beating heart, that vitality, and life-force, is present in all of Wallaces portraits. Alan OHare, of Dorchester, speaks of learning to have patience with yourself, and asking questions that ground you in the now: What is it in this moment that you treasure What is it about you that you treasure in this moment Can you remember what you love about you What do you love about right here, right now These photographs and words underline not just the fear and despair, because those are real, but the dignity and the humanity of people with the disease. In each image, one can see the burning twinkle behind the eyes that shows, Im here, Im here.
The Boston Globe

Author Bio

Joe Wallace has been a portrait photographer and storyteller for twenty years. Honing his storytelling skills in advertising, his photo-narrative work blends his journalistic eye with his fine art sensibility. Several members of his family have lived with dementia, compelling Wallace to tell a more complex and honest story of those living with the disease.