In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child
(Paperback)
Publishing Details
In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child
By (Author) Myra Bluebond-Langner
Princeton University Press
Princeton University Press
29th August 2000
United States
Classifications
Professional and Scholarly
Non Fiction
Welfare and benefit systems
Coping with / advice about illness and specific health conditions
Psychology
362.829
Physical Properties
Paperback
328
Width 152mm, Height 235mm
454g
Description
Suggests that understanding the impact of the illness lies not in identifying deficiencies, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. This book focuses on the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis.
Reviews
Winner of the 1997 Charles A. Corr Award in Literature "In the Shadow of Illness is a beautifully written, well-organized book that is an outstanding contribution to our understanding of the impact of chronic illness on the family and the factors that affect the coping mechanisms over the trajectory of chronic illness. An important source of information and understanding for families who find themselves in the shadow of illness."--Kirby Pope, Bulletin of the Menninger Clinic "Myra Bluebond-Langner gives us a framework of understanding how families--siblings as well as parents--move through their understanding of the condition, and their coping strategies, by redefining 'normal' family life to include routine CF care and reassessing their family priorities. She has done this with great skill and sensitivity."--Clinical Child Psychology and Psychiatry "I strongly recommend this book to anyone involved with families of children with CF and potentially with other chronic life-threatening illnesses. There is no question that it provides new and valid insight concerning parent and sibling adaptation."--Omega "An important contribution to the ethnography of illness experience...This book will be of great value to researchers and clinicians with interests in how families cope with chronic illness, life-threatening conditions, and genetic disorders."--Joan Ablon, Medical Anthropology Quarterly
Author Bio
Myra Bluebond-Langner is professor emerita at University College London and Board of Governors Professor of Anthropology Emerita at Rutgers University. She is also the author of The Private Worlds of Dying Children (Princeton), winner of the Margaret Mead Award.
